Twitter Updates
- All that Torch stuff wouldn't normally be my thing: this is why it is nirdp.org.uk/supporting-our⦠#raredisease #NIRDP 10 hours ago
- Lovely Will is shameless #thevoiceuk 23 hours ago
Monthly Archives: February 2012
what day is it?
You can head over to the NI Rare Disease Partnership site to get all the facts and figures- why the families, charities and clinicians felt the need to act together. You can read the findings of a report on patient … Continue reading
Posted in Uncategorized
Tagged 29 Feb, carers, connections, families, isolation, NIRDP, patients, rare disease day
8 Comments
dessert
weekly photochallenge: indulgeĀ
Posted in Uncategorized
Tagged not all mine, oops, weekly photochallenge, Weight Watchers, yum
12 Comments
hands up
Join us; join hands On 29 February at 12:00 noon (GMT): Join and raise your hands to show your solidarity with rare disease patients around the world! Whether you are 10 people in an office, 100 people at a conference … Continue reading