I’ve done more in the last two days that in the previous 2 weeks. I never quite get the hang of the ‘pacing’ thing. Pacing is all about being sensible, conserving energy, never doing too much, avoiding ‘boom & bust’. It’s really hard to do. After weeks of being fit for nothing (remember the not being able to sit up time) I was able to do things. Hurrah!
There was a major clear out of Girl2′s bedroom. Apparently nearly 12 year olds going to secondary school don’t need a cupboard full of Build a Bears and random dolls. Or the picture books her mother just couldn’t get rid of years ago. I was able to cart bags of things to the garage for the charity shop, and fill the wheelie bin with rubbish, but Spurs Fan had to lift the rest into the roof space. By the time I was done I could hardly lift my arms to the washing line. Then, too late, I rested.
Yesterday Ditzy and I got dressed up, had lunch out and collected a charity donation for the PSP Association. Thank you, fundraising engineers. I completed the current module for my Stanford on line course, Patient Engagement Design, and complained a bit. The course isn’t quite what I thought it would be- more about designing technology to
make money out of engage patients than designing effective patient engagement- but I’ll give it another week or two before having a full on rant.
Then, (yes, there’s more!) we went out. Spurs Fan and I, alone and unaccompanied. We were early, because the early oldie with a stick gets a seat. We went to see First Aid Kit in concert, and they were fabulous.
Swedish sisters with wonderful voices and sensible shoes. One with a frock and fringe, the other with endless limbs and shiny shiny Abba type trousers. We expected harmonies and loveliness, we also got hard rocking, Jack White type badass (but sort of sweet) moments.
I’ve been listening to their albums for a while, singing along in the car, or while doing other things. Last night I heard lyrics I hadn’t noticed before, and “I’d rather be broken than empty” worked for me. I’d rather recover than never try. I’d rather be frustrated than uninterested. I’d rather need to sleep than be bored stupid. I try not to be silly about it, or push myself beyond all limits, but I’m not going to lie back and watch daytime TV if I can avoid it. Sometimes that’s what I need and I retreat from the world, but I hate missing the chance to sing along. “Sing with me” they say. And so I do.
Today and tomorrow? Bed.