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Tag Archives: PSP
I like the visuals
graphic from PSP Association blog I’m not forgetting about the readers among you: Richard Rainwater, a billionaire wheeler dealer, is living with PSP, and Fortune featured his case. If any of you are billionaire wheeler dealers (and maybe even if … Continue reading
Posted in Uncategorized
Tagged CBD, connections, herself, PSP, rare diseases, support, symptoms
14 Comments
teaching the professionals
I trained as a teacher and spent years employed in variations on a theme of education. Spurs Fan is a poorly fully paid up member of the teaching profession. Girl1 used to plan to be a school principal before she knew about world … Continue reading
Posted in Uncategorized
Tagged comfy seat, family, health professionals, herself, ME/CFS, NIRDP, PSP, rare diseases, teachers, wisdom
7 Comments
herself
Brought to you from the different world of a year ago; my Mothers’ Day post. My mum is a star. Vibrant and sassy, full of style and charm. A veteran of many a golf club and gin joint. An adventurer, … Continue reading
Posted in Uncategorized
Tagged family, grief, herself, loss, love, Mothers' Day, PSP, terminal illness
15 Comments
step 1: create a charity
Life experiences, circumstances and interests shape who we are, who we aspire to be, what we want to be doing with ourselves. I’ve worked in education, in youth training, for a criminal justice charity. I was a human sign post/ … Continue reading
Posted in Uncategorized
Tagged charity, family, health, herself, NI Rare Disease Partnership, Patient and Client Council, PSP, rare diseases, social care, what's next?
10 Comments