Tag Archives: rare diseases

rare disease- a way forward?

Posted on May 25, 2012 by

My head has been full. Anyone who follows me on twitter will have been fed up with the rambling. I’ve been struggling with Consultation on the UK Plan for Rare Diseases. Sounds exciting, eh? Well, it ought to be. Finally, the … Continue reading →

Posted in Uncategorized | Tagged , , , , , , | 8 Comments

I like the visuals

Posted on April 17, 2012 by

graphic from PSP Association blog I’m not forgetting about the readers among you: Richard Rainwater, a billionaire wheeler dealer, is living with PSP, and Fortune featured his case.  If any of you are billionaire wheeler dealers (and maybe even if … Continue reading →

Posted in Uncategorized | Tagged , , , , , , | 14 Comments

teaching the professionals

Posted on March 24, 2012 by

I trained as a teacher and spent years employed in variations on a theme of education. Spurs Fan is a poorly fully paid up member of the teaching profession. Girl1 used to plan to be a school principal before she knew about world … Continue reading →

Posted in Uncategorized | Tagged , , , , , , , , , | 7 Comments

mushroom

Posted on March 8, 2012 by

I don’t like mushrooms normally. They’re dark and slimy and out of control. Also, they taste horrible. The NI Rare Disease Partnership is mushrooming, in a good way. (It turns out that there is no appropriate image for that.) Every … Continue reading →

Posted in Uncategorized | Tagged , , , , , , , | 16 Comments