Twitter Updates
- All that Torch stuff wouldn't normally be my thing: this is why it is nirdp.org.uk/supporting-our… #raredisease #NIRDP 10 hours ago
- Lovely Will is shameless #thevoiceuk 23 hours ago
Tag Archives: volunteering
run, Spurs Fan, run
. Oh, the excitement! Spurs Fan will be running with the Olympic Torch as part of the London 2012 torch relay. Nana and Grandad are coming back: they have already printed out all the maps in all the sizes. The … Continue reading
Posted in Uncategorized
Tagged family, London 2012, Olympic torch relay, olympics, sport, style issues, uniform, volunteering
11 Comments
mushroom
I don’t like mushrooms normally. They’re dark and slimy and out of control. Also, they taste horrible. The NI Rare Disease Partnership is mushrooming, in a good way. (It turns out that there is no appropriate image for that.) Every … Continue reading
Posted in Uncategorized
Tagged beginning, creative, family, herself, NIRDP, rare diseases, the Boomtown Rats, volunteering
16 Comments
counting down to a launch
playing somewhere else spending hours searching for details of local papers a support group meeting lunch out copying pasting creating targetted press releases for different locations walking chatting querying ranting worrying about interviews, again planning On 29 February, international rare … Continue reading
Posted in Uncategorized
Tagged exhausted, NI Rare Disease Partnership, NIRDP, rare diseases, volunteering, whose great idea was this?
5 Comments
capacity
My inbox is bursting with your interesting, creative, hilarious and challenging blog posts. I haven’t read them yet. I culled my twitter ‘following’ list to make it easier to keep up to date, but it’s beyond me. The hotpress is … Continue reading
