What time, Speccy?
Why, dear reader, Rare Disease Day! Those of you who were around this time last year may remember videos, anxiety about an event and me practising my burble for the Health Minister…
The 2013 theme for Rare Disease Day is Rare Disorders Without Borders– particularly relevant to a small island on the far west of Europe with its own international border.
NI Rare Disease Partnership are co hosting a joint event with the charities interested in rare disease in the Republic of Ireland. There will be Ministers, an EU bod, professors of complicated things, and examples of effective cross border health care work.
Most importantly of all, there will be patients, carers and families telling tales of living with rare disease, sharing their expertise with the Ministers, the policy makers and the commissioners. It is only by working together that we can begin to address the issues that affect us all- international boundaries are far from our only concern.
Our fabulous, dynamic, innovative event (I hope!) will be held in City Hall, Dublin on 28 February. In the unlikely event of me not having nagged at you before, and you’re interested in attending, you can register here. It will be well worth attending.
At least one of the speakers will be
devastatingly gorgeous spellbinding.