the grand day out

We were early. We had jobs to do.

rdwb venue

Luckily, those included drinking coffee and consuming yummy pastries. Yes, there was influencing, relationship building, and all manner of worthy stuff; that is both fuelled and eased by coffee and pastry.

NI Minister of Health, Edwin Poots
NI Minister of Health, Edwin Poots

The Ministers (Northern Ireland and the Republic of Ireland) spoke positively.

Ditzy D and Treasurer, organising
Ditzy D and Treasurer, organising

The session chairs kept to time.

Auntie Sadie, schmoosing
Auntie Sadie, schmoosing

More work will happen as a result of the day.

Chairperson, making  'An Announcement'
Chairperson, making ‘An Announcement’
that one with the glasses may be pretending to listen...
that blonde one with the glasses may be pretending to listen…

A good result in anyone’s book.

Planning for the 2014 event is already underway.

all photographs courtesy of ipposi

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14 thoughts on “the grand day out”

    1. A big thing with rare disease is that folk think that hardly anybody is affected. Collectively that’s simply not the case- we were told that in Ireland 1person in 12 is affected by a rare disease- a huge number facing similar issues, even if there’s only 1 person on the island affected by that particular condition.

    1. There were very positive bits, so I’m glad we negotiated for a long time to make it work! The venue looked fab, but was freezing! I had to keep my scarf on, and wished I’d had thermals 😉

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