Rare Disease day is on Friday 28 Feb. I may have mentioned it before.
Almost by accident, I ended up on the organising team for the all Ireland event to mark the day. I’m well outside my comfort zone.
Do government Ministers need special parking spaces?
How many wheelchairs?
Drawing pins or blue tak?
Ooh, a guide dog- do we need to do anything?
Webcast or video?
Prizes for the poster competition?
How long do the speakers get?
If we have that speaker, do we need to get another one to match/ contrast?
How many people?
Have we got our press release?
Who do we need to schmooze?
Who is compiling the conference programme?
I am surrounded by lists, in an attempt to control the chaos. The chaos is not real, actual chaos. It’s all in my head.
Things are a bit through other, but are on track. Everyone knows what’s happening. Chairperson continues to work her magic, pulling rabbits out of hats at the last minute with a smile, as if that were the plan all along.
In the meantime, Spurs Fan maintains that the only way to attract my attention is to include the phrase ‘rare disease day’ in every conversation.
And after, I will sleep.
me, mine, and other bits 
Relax! It will all fall into place on the day. Just get the glad rags ready and enjoy.
It will, eventually. i’ll be glad when Fri comes around, because then we’ll just have to get on with it!
I’m sure all will be well, but here’s wishing you a seamless and brilliant Rare Disease Day.
I’m sure I’ll let you know all about it!
Don’t push yourself too hard though! 🙂
That’s the problem, IE…
Water for the guide dog. And a place it can let off steam and have some down time.
There’s loads out outdoor space for when she needs to be a doggy 🙂
Well done. At the Paralympics I was surprised not to see more bowls of water for assistance dogs.
I’m pulling for you! It will go well, Fiona. I’m sure that it takes being somewhat obsessed to handle so much detail. It is going to be a success, and then you can let it go for a while! 🙂 Exhale!
So many people have put so much work into this, it’s going to be the best event EVER! 😉