Ditzy is our Commander in Chief. She does all the organising- booking the rooms, chasing up participants, bringing the cups, the biscuits and the leaflets. Driving around the region to help people gather together to help each other.
It’s PSP support group time.
It’s easy to underestimate how important support groups can be. Some groups focus on ‘doing’, fundraising and the like. At the minute our three small groups view the room as a few hours of respite. A chance to just be. A chance to share. Sometimes the combination of raw emotions in the room can lead to tense situations, More often there is an outpouring of recognition, ‘me too’. Validation. That very powerful feeling of ‘belonging in uncertainty’. Talking to people who understand what they hear. Asking the questions you don’t want to ask of people who know those questions, who’ve had to work out their own answers. Managing to laugh, despite yourself.
It is humbling to be part of conversations with people about loneliness, isolation, being dismissed by doctors. To hear people ponder how their loved one may be better of if s/he had a form of cancer. To be with people as they cry in despair, as they cry for their spouse, as they cry for the life they have lost. People grieving as their loved one lives. People talking about being abandoned by family, by friends, by health professionals. And the odd celebration- a neurologist or a physio or a social worker who was helpful; a technique or an aid that worked for a while.
When I wonder, through my brain fog, what I’m doing, I consider the support groups. When I talk to medical students, allied health professionals, government Ministers and civil servants, commissioners, I’m talking for all the people at the support groups. People like Herself, or my aunties, or Ditzy. I’m doing it for us all.
You know who to blame!
Contact the PSP Association
Telephone: 0300 0110 122
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