Our family mix are Spurs Fan, Girl1, Girl2, Jake- a rehomed Westie with trust issues- and me, Speccy. We live in Belfast, Northern Ireland- a cold, grey sort of place: we look for the splashes of colour.
Girl1 is 13, a performer beginning to make independent steps into the outside world. That seems too soon to me, but apparently wrapping her up in cotton wool until she’s 20 would do her no favours. Girl2 is 11, full of giggles, melodrama and anxiety about fractions. Spurs Fan is a primary school teacher and devotee of Tottenham Hotspur FC.
In 2006 I contracted ME, had to give up work, discovered a whole new world on the internet, and began to learn a lot about health issues. Now, I volunteer for the PSP Association (my mum, Herself, died from PSP in 2011) and the NI Rare Disease Partnership. I’ve become interested in the role of the e-patient: enabled, empowered, engaged, equipped, and also, electronic. How does our healthcare system ‘involve’ patients? Are we making progress towards safe, effective, patient centred care?
This is a personal blog. I post about whatever’s going on in my head. If I worked with you, this is the sort of stuff you’d hear as we waited for the kettle to boil. There are tales from the middle age, rants, book reviews, music snippets, links to better writers, and family chaos. There are glances at local politics, ramblings about living with chronic ill health, bursts of wild enthusiasm, and pauses while I recover. Every so often it may look like I’m attempting fiction- that’s just me processing something slightly differently.
You can contact me at memineandotherbits-speccyATyahoo.co.uk