This is a personal blog. I post about whatever’s going on in my head. If I worked with you, this is the sort of stuff you’d hear as we waited for the kettle to boil. There are glances at local politics, ramblings about living with chronic ill health, bursts of wild enthusiasm, and pauses while I recover. There are tales from the middle age, rants, book reviews, music snippets, links to better writers, and family chaos. The regional health & social care system gets mentioned a fair bit.
In 2006 I contracted ME, and had to give up work. Eventually, I discovered a whole new world on the internet, and began to learn a lot about health issues. Now, I volunteer for the PSP Association (my mum, Herself, died from PSP in 2011) and the NI Rare Disease Partnership. I’ve become interested in the role of the e-patient: enabled, empowered, engaged, equipped, and also, electronic. How does our healthcare system ‘involve’ patients? Are we making progress towards safe, effective, patient centred care?
Our family mix are Spurs Fan, Girl1, Girl2, Harry, a bouncy Tigger-like Cairn terrier- and me, Speccy. We live in Belfast, Northern Ireland- a cold, grey sort of place: we look for the splashes of colour. We used to share our lives with Jake, the grumpy westie, but he left us in spring 2017.
Girl1 is 17, an independent, self contained sort. Unless there are birds about. She’s terrified of birds. Girl2 is 15, full of giggles, melodrama and chat. The girls do a bit of ballet, a lot of Irish dancing, and are lucky enough to get to travel abroad to perform sometimes. Spurs Fan is a primary school teacher and devotee of Tottenham Hotspur FC.
I tweet as @speccymcspec