I’ve been to a conference, feeling worthy, at the local university, on epatients, blogging and social media. It was about story telling and connection and sharing and learning and power imbalances. I spent days with amazing people, a peer amongst academics, and still got to sleep in my own bed and hug my little people.
I’d always intended to attend the event, but I was thrown by being asked to speak a week before. (I’d written a proposal months ago, and not considered it at all when it wasn’t accepted then.) Cue panic of research, sleep, more research, writing, sleep. I produced something and stopped writing when I got bored. I used some of my own story; I would use more the next time.
I often tell people about how all the stories matter, but appear to be reluctant to keep talking about my own. Do I think that ‘me as patient’ is too mundane to have any impact? Do I think ‘me as carer’ is out of date and the lessons have all been learnt? Oliver Burkeman’s article Why don’t we take our own advice? resonated with me. I’d encouraged one of the other speakers to apply, to tell her story, to share her experience, and yet I was freaking out when I had the chance to do so myself.
Marie on the power of stories in health, at a different event
Sally’s story from Saturday
My head is still buzzing. I have much to learn and relearn. I have ordered many books referenced at the conference. Fingers crossed my brain has the energy to read them.
How can we use stories to improve the system?
Work in progress…