Things have been busy round here. The last few weeks have been action packed as our charity coordinated public meetings and gathered a written response to the draft NI Rare Disease Implementation Plan. I was talking and writing and listening and learning. I imagined a blog post about a learning curve that was more of a right angle, but I hadn’t the brain power to write it. I wrote a paper on empowerment of people affected by rare disease. I gave a talk on ‘Patient leadership; tapping into a wider resource’. I wondered about a tweet wall for a conference. (Apparently an AV company will wave a magic wand and make us very impressive.) I ran a tweet chat and then got involved in a discussion about a website and other resources to support patient ‘involvement’ in NI.
And then I stopped. I ran away from the laptop. I told my fellow volunteers that I wasn’t going to be able to help over the weekend. I went away. I brought no documents with me and my family refused to let me have one of the household tablet gadgets.
I went off to Scotland, to play with the Brother, Arty Lady, Little Miss Awfully Grown Up and Space Warrior. I got a Lightsaber and I wasn’t afraid to use it. There were tickling games and lying down pretending to sleep games. There were car games with lovely little people and a card game for horrible people. I got to walk on the beach and spend time at a spa spot in beautiful Edinburgh. I slept in the afternoons. I got to eat yummy new recipes as part of Arty Lady’s healthy project.
Eat, sleep, play. Repeat.
Simply stopping. It’s a great thing. Just don’t try cycling on the beach…